{"id":3864,"date":"2022-06-17T10:12:00","date_gmt":"2022-06-17T09:12:00","guid":{"rendered":"https:\/\/www.familyfund.org.uk\/?p=3864"},"modified":"2025-02-03T13:03:19","modified_gmt":"2025-02-03T13:03:19","slug":"amys-story","status":"publish","type":"post","link":"https:\/\/www.familyfund.org.uk\/news\/amys-story\/","title":{"rendered":"Support for over 18s through Your Opportunity grants"},"content":{"rendered":"<html><body><p>Amy is 24 and lives with her mum and dad in Wales. Her mum Kerrie-Ann explains, &ldquo;Amy has a condition called Coffin-Lowry syndrome, which is a rare genetic disorder that impacts her body, causing her to have a double curvature of the spine and learning disabilities.&nbsp;She also has speech and language delay and drop attacks causing her to fall to the ground.&rdquo;<\/p>\n\n\n\n<p>Amy has mobility issues and relies on a wheelchair to get around. &ldquo;She is also hypersensitive to sound. Walking in crowded places can be overwhelming and overstimulating for her. Amy&rsquo;s eardrums are also affected, making her lose her balance quite easily.  Her vocabulary consists of around 25 single words and ten double words she uses to communicate.&rdquo;<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/03\/20220727_143211-768x1024.jpg\" alt=\"Girl wearing rainbow tee-shirt is sat at a table and smiles at camera \" class=\"wp-image-3984\" style=\"width:338px;height:auto\" srcset=\"https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/03\/20220727_143211-768x1024.jpg 768w, https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/03\/20220727_143211-225x300.jpg 225w, https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/03\/20220727_143211-1152x1536.jpg 1152w, https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/03\/20220727_143211-1536x2048.jpg 1536w, https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/03\/20220727_143211-scaled.jpg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<p>Kerrie-Ann says, &ldquo;She is the most pleasant happy young lady. She loves company, she enjoys her favourite people around her, and that&rsquo;s when she is happiest. We enjoy sitting in the garden together and spending time outside.&rdquo;<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"support-through-your-opportunity-grants\">Support through Your Opportunity&nbsp;grants<\/h2>\n\n\n\n<p>Amy&rsquo;s family received support through Your Opportunity grants, which supports disabled young people aged 18 to 24.<\/p>\n\n\n\n<p>&ldquo;Because the past two years have revolved around the pandemic, the grant helped us get back to normality. We received day trips, which allowed us to visit Amy&rsquo;s favourite place of all time, Lapland UK. It&rsquo;s a highlight for us every year. We spent that quality time together, forming unforgettable memories, it was fantastic.&rdquo;<\/p>\n\n\n\n<p>In previous years, Amy&rsquo;s family received other grants including a tumble dryer.  &ldquo;The tumble dryer we received through Family Fund was a godsend. It made such a difference because Amy is doubly incontinent. There is a lot of washing and drying involved every day.&rdquo;<\/p>\n<\/body><\/html>\n","protected":false},"excerpt":{"rendered":"<p>Amy is 24 and has rare genetic condition. Mum Kerrie tells us about how Your Opportunity grants have helped their family. <\/p>\n","protected":false},"author":3,"featured_media":16184,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_oasis_is_in_workflow":0,"_oasis_original":0,"_oasis_task_priority":"","_mixd_wp_review_post_reminders":[],"_mixd_wp_review_date":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[7],"class_list":["post-3864","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-family-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Support for over 18s through Your Opportunity grants - Family Fund<\/title>\n<meta name=\"description\" content=\"Amy is 24 and has rare genetic condition. 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