{"id":7993,"date":"2023-08-01T12:20:00","date_gmt":"2023-08-01T11:20:00","guid":{"rendered":"https:\/\/www.familyfund.org.uk\/?p=7993"},"modified":"2023-08-21T10:10:20","modified_gmt":"2023-08-21T09:10:20","slug":"summertime-for-families-raising-disabled-or-seriously-ill-children","status":"publish","type":"post","link":"https:\/\/www.familyfund.org.uk\/news\/summertime-for-families-raising-disabled-or-seriously-ill-children\/","title":{"rendered":"Summertime for families raising disabled or seriously ill children"},"content":{"rendered":"<html><body><p>Summertime can be challenging for families raising a disabled or seriously ill child. Crowded places, sensory overload, changes to routine and judgment from others are just some of the issues families tell us make it difficult.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"our-latest-research\">Our latest research:<\/h2>\n\n\n\n<p><strong>68% of families<\/strong> we support say they haven&rsquo;t been able to take part in as many outdoor, and adventurous, activities as they&rsquo;d like to. And <strong>71% of families <\/strong>tell us it&rsquo;s difficult to find days out suitable their children.<\/p>\n\n\n\n<p>As many as <strong>94%<\/strong> <strong>of families<\/strong> said they&rsquo;ve experienced a negative reaction to their disabled or seriously ill children when on a family break, or day out. <strong>87%<\/strong> <strong>of families<\/strong> report other people&rsquo;s behaviour or attitudes affects what they do as a family when out and about.<\/p>\n\n\n\n<p>This month we&rsquo;re sharing summertime experiences, stories and tips from families we support, and new findings from our latest Family Poll. We want to raise better awareness of what life&rsquo;s really like for families raising a disabled or seriously ill child.<\/p>\n\n\n\n<p>Families we support face an average extra cost of &pound;17.85 for a day out. So we&rsquo;ll be sharing ideas for fun, accessible outings, on a budget.<\/p>\n\n\n\n<p>We&rsquo;ll also look at simple things individuals can do, and think about, to reduce stigma and ease pressures for families with children with additional needs, on days out and holidays.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Family stories:<\/h3>\n\n\n\n<h4 class=\"wp-block-heading\">Mum Rebecca tells us:<\/h4>\n\n\n\n<figure class=\"wp-block-image alignright size-medium\"><img loading=\"lazy\" decoding=\"async\" width=\"272\" height=\"300\" src=\"https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/07\/image1-272x300.jpeg\" alt=\"Mum and son sit on front of a ride smiling at the camera, with dad sat behind them.\" class=\"wp-image-7970\" srcset=\"https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/07\/image1-272x300.jpeg 272w, https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/07\/image1-930x1024.jpeg 930w, https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/07\/image1-768x846.jpeg 768w, https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/07\/image1-1395x1536.jpeg 1395w, https:\/\/www.familyfund.org.uk\/wp-content\/uploads\/2023\/07\/image1-1860x2048.jpeg 1860w\" sizes=\"auto, (max-width: 272px) 100vw, 272px\" \/><\/figure>\n\n\n\n<p>&ldquo;Summer is my favourite time of the year. When I had children, I was so looking forward to the long school holiday and time at the beach. But summer isn&rsquo;t quite as I expected.&rdquo;<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Mum Katie tells us:<\/h4>\n\n\n\n<p>&ldquo;Summer months are often viewed as a &lsquo;break from preschool\/school&rsquo; or a fab opportunity for family time. For Edward, it takes most of the summer to adjust to the massive change in the weekday routine. Subtle changes like sun cream or a sun hat can take several weeks to adjust to, and for Edward to accept. The initial few weeks are filled with meltdowns, wobbles and anxiety.&rdquo;<\/p>\n\n\n\n\n\n\n\n\n\n    \n<a class=\"button\" href=\"https:\/\/www.familyfund.org.uk\/news\/our-summer-edwards-story\/\">\n    Read Katie&rsquo;s summertime story\n    <\/a>\n\n\n\n\n    \n\n\n\n\n    \n<a class=\"button button--secondary\" href=\"https:\/\/www.familyfund.org.uk\/news\/my-summertime-story-rebecca\">\n    Read Rebecca&rsquo;s summertime story\n    <\/a>\n\n\n\n\n\n\n\n\n\n    \n<a class=\"button\" href=\"https:\/\/www.familyfund.org.uk\/news\/my-summertime-story-amanda\">\n    Read Amanda&rsquo;s summertime story\n    <\/a>\n<\/body><\/html>\n","protected":false},"excerpt":{"rendered":"<p>Sharing summertime experiences and top tips from families we support, along with the latest findings from our research. <\/p>\n","protected":false},"author":10,"featured_media":8009,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_oasis_is_in_workflow":0,"_oasis_original":0,"_oasis_task_priority":"2normal","_mixd_wp_review_post_reminders":[],"_mixd_wp_review_date":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1],"class_list":["post-7993","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.6 - 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